Autism Resource Guide

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Suggested Reading

Population One: Autism, Adversity, and the Will to Succeed

This collection of personal essays, by 18-year-old Tyler McNamer from Gig Harbor, Wash., explores the author’s life with autism.

Tyler says, “Having a mind that views the world differently is a new experience for everyone. Autistic people are here for some reason. Let’s see if you can find that reason.”

$19.95, available at www.populationone.com

Autism Guidebook for Washington State

This 142-page comprehensive guide was created by the Governor’s Autism Task Force. It includes information on medical aspects, instructional programs, community transitions, community autism awareness training, future life planning, and more.

Free download at here.doh.wa.gov/materials/autism-guidebook

Suggested Organizations

Autism Society of Washington

ASW works to provide education and advocacy, and mobilizes local chapters to create safe and inclusive communities for individuals with autism. Find local chapters of this organization across the state.

www.autismsocietyofwa.org

Autism Speaks

A 10-year-old national organization connecting families with information, resources and opportunities for supporting a client with autism nationwide – the Washington office is in Seattle.

www.autismspeaks.org

Alyssa Burnett Center – Seattle Children’s Hospital

For young adults 18 and up with ASD, the center offers classes, activities, and ways to join the community, helping to bridge the transition between childhood and independent adulthood.

www.seattlechildrens.org

Adult Autism Clinic – University of Washington

Designed for adults with ASD and their families, this clinic helps with medication, mental health assessment, screening, care management support and aids in locating resources.

www.uwmedicine.org/locations/adult-autism

Interactive Autism Network

Individuals with ASD and their family members can use this network to volunteer to participate in ASD research.

www.ianresearch.org

Caregiver Tips

Record how you communicate so respite providers can learn from your expertise.

For parent providers, nobody can communicate as well as you do with your child with autism. But recording how you communicate, ways you respond to a meltdown, and common scheduled events can help you skill share with other caregivers.

Tip via Autism Guidebook for Washington State.

Use a visual calendar in your home to prep the individual with autism for upcoming activities.

Many providers suggest using a clipboard, velcro, or magnet icons that can be moved around for the upcoming day or week ahead. Parent Provider Sherri Klennert says her son, Jeremy, can then pick and choose what activities he wants to do by removing icons. This also helps their family prevent meltdowns from unexpected events.

Suggested Apps

ChoiceWorks: Visual Calendar

This versatile app has a built-in visual calendar, a “waiting” timer, and a feelings board to assist in expressing emotions. The app includes a library of images but can also be customized.

$6.99 for iPhone, iPod, and iPad only

MyTalk Lite

An Augmentative and alternative communication (AAC) app, MyTalk allows users to customize a board of images that play recorded sounds when touched. You can personalize the boards with your own images and recordings.

Free “lite” version for Android, iPhone, and iPad

Cause and Effect Sensory Light Box

Light Box uses abstract animation and sound to introduce basic touch skills and awareness, but the app is appropriate for any age group. Twenty-four different scenes range from loud and energetic to calm and immersive.

$3.99 for Android, Kindle, iPhone, and iPad

Share Your Tips!

What tools, techniques, and strategies have worked for you in providing autism care?

Let us know in the comments below.

Also in This Series:

Part 1: Kyle’s Story

How chemical sensitivities set the Adams family on journey to find a pain-free life.

Read Kyle’s Story»

Part 3: Tim’s Story

Managing for fits, Tim and Denese find ways to communicate before an outburst.

Read Tim’s Story»

Part 2: Jeremy’s Story

The Klennerts find ways to communicate beyond the spoken word.

Read Jeremy’s Story»

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About the Author

I have a passion for working with people who care for those who are in need of some assistance to live a quality life and pursue their dreams and goals. I take care of my son, Mike. As the mother of an adult I want his dreams to come true and I make it my responsibility to figure out how to make that happen for him. I love hearing other caregiver’s stories about how they care for their clients and help them live a quality life and pursue their dreams. And I love writing their stories to share with everyone.

 

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